Introducing Evan Fasciano, a 5-year-old Connecticut kid with an incredibly uncommon condition.

He was born with harlequin ichthyosis, sometimes called fetal ichthyosis or fetal ichthyosis. His skin is growing 10 times quicker than that of a typical child as a result of this disease, which puts him in imminent danger of infection.

Evan is afflicted with the most severe phase and one of the many kinds of this illness. He must thus bathe at least twice daily to prevent any potential infections. His skin must be cleaned and a specific lotion must be applied to the whole surface of his body each day by his parents.